The Truth Behind the Term “Rett’s Autism”
“Rett’s autism” is a term you might see online—but it’s actually outdated and misleading. The correct diagnosis is Rett syndrome, a rare neurological condition that was once mistakenly grouped under autism.
Understanding the difference matters, especially for parents searching for clear answers.
What people mean when they say “Rett’s autism”
Years ago, Rett syndrome was classified under autism spectrum disorders because some early behaviors looked similar—like limited speech, repetitive movements, and social withdrawal.
Today, experts know better.
Rett syndrome is not autism. It’s a genetic neurological disorder, most often affecting girls, and it follows a very specific developmental pattern.
So when someone says “Rett’s autism,” they’re usually using an outdated label.
What Rett syndrome actually is
Rett syndrome is caused by a mutation in the MECP2 gene. Children with Rett syndrome often develop typically at first, then experience developmental regression.
Common signs include:
- Loss of spoken language
- Loss of purposeful hand use (often replaced by hand-wringing)
- Motor difficulties and balance issues
- Breathing irregularities
- Seizures in some cases
This regression is one of the biggest differences between Rett syndrome and autism.
How Rett syndrome differs from autism
While some behaviors may overlap, the conditions are very different. Key differences include:
- Rett syndrome has a known genetic cause
- Developmental regression is a defining feature
- It primarily affects girls
- Motor and physical symptoms are more severe
Autism, on the other hand, is a spectrum with many causes and does not typically involve the same pattern of regression seen in Rett syndrome.
Can ABA therapy help children with Rett syndrome?
ABA therapy does not treat Rett syndrome itself, but some children may benefit from ABA-based strategies to support communication, daily living skills, and behavior.
Parent involvement is especially important. Strategies often focus on:
- Functional communication
- Increasing independence where possible
- Supporting routines and transitions
Therapy plans should always be individualized and coordinated with medical providers.
Support for families
Navigating a rare diagnosis can feel overwhelming. The most important thing to remember is that your child is still learning, growing, and deserving of meaningful support.
Inclusive ABA works closely with families to provide compassionate, individualized care and strong parent collaboration through:
- Home-based ABA therapy
- School-based ABA support
- ABA parent training to help families feel confident at home
Reach out today to learn how supportive therapy services can complement your child’s overall care plan and help your family feel supported every step of the way.
FAQs
Is “Rett’s autism” a real diagnosis?
No. It’s an outdated term. The correct diagnosis is Rett syndrome.
Is Rett syndrome on the autism spectrum?
No. Rett syndrome is a separate genetic neurological condition, not part of the autism spectrum.
Can children with Rett syndrome receive ABA therapy?
Some children may benefit from ABA-based strategies for communication and daily skills, depending on individual needs.
Sources:
- https://www.mayoclinic.org/diseases-conditions/rett-syndrome/symptoms-causes/syc-20377227
- https://www.ninds.nih.gov/health-information/disorders/rett-syndrome
- https://my.clevelandclinic.org/health/diseases/6089-rett-syndrome
- https://www.nichd.nih.gov/health/topics/rett/conditioninfo/symptoms
- https://www.mcri.edu.au/a-z-child-health/o-r/rett-syndrome
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